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By National Research Council, Division of Behavioral and Social Sciences and Education, Committee on National Statistics, Panel on DHHS Collection of Race and Ethnicity Data, Edward Perrin, Daniel Melnick

The panel convened the Workshop on enhancing Racial and Ethnic info in well-being to check information regarding present private-sector and kingdom information assortment practices in gentle of latest federal, country, and native rules, legislation, and necessities. The workshop shows featured the views of information clients, overall healthiness care services, insurance representatives, country and native public health and wellbeing officers, and regulatory officers. contributors assessed rules, practices, limitations, and possibilities for gathering racial and ethnic information of their settings, and explored ways in which deepest and country platforms might be superior to handle info wishes. In guidance for the workshop, the panel commissioned 4 heritage papers to fill gaps in wisdom of private-sector and country govt guidelines and practices and to deal with the significance of racial and ethnic facts assortment. The panel is usually analyzing the position of socioeconomic prestige relating to wellbeing and fitness and future health care disparities. notwithstanding, the workshop meant to concentration in basic terms on racial and ethnic info assortment. The panel's ultimate document will include an entire attention of the gathering of racial, ethnic, and socioeconomic prestige data.

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Extra info for Improving racial and ethnic data on health: report of a workshop

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S. A. S. Department of Health and Human Services Jennifer Madans, Centers for Disease Control Diane Makuc, National Center for Health Statistics Jennifer Malat, University of Cincinnati Mildred Martinez, Kaiser Permanente Donielle Newell, Council on African American Affairs, Inc. , Council on African American Affairs, Inc.

Using Existing Data Sources Workshop participants identified a large array of existing data about health status and care. These data are collected by federal, state, and local governments as well as private health plans and some large provider organizations. Issues related to these data were considered during the workshop presentation and discussions. Participants reported that the primary source of existing administrative health care data with racial and ethnic information is Medicare, though Medicaid and hospital discharge data also are potentially useful.

For example, Daniel Friedman reported that only about half of roughly 75 individual record data sets at the Massachusetts Department of Public Health have racial and ethnic data, and most of those three dozen data sets derive, directly or indirectly, from federal programs such as those of the CDC. ” This creates a particular problem for states because their data collection is more centralized. Consequently, states find that they have to accommodate their systems to multiple federal standards. • Challenge of small numbers.

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